I know it's only been a few days, but I already have updates on Matilda. At the end of March we went to see the geneticist, to test for Neurofibromatosis. I was told it would take a few weeks for the results to come back. Well, they came back, and unfortunately, Matilda does have NF. It's heartbreaking, but at least I know. I've lived with it, and know it can be difficult at times. I think of all the people who grow up not knowing they have it, then finding out later in life, and not knowing what to do, or all that it can do. I fortunately know more about it, and know what resources that we'll most likely need. I plan on still doing everything I can for my Matilda, in giving her the best chance in this world with all that I can. Nothing will stop us. While I was growing up, I know some things for me went misdiagnosed, or not diagnosed at all, and I'm sure not all resources were given to me. Also, it made me feel weird having to do different things than the other kids. I hope Matilda doesn't feel the same way. I know how hard it is to be different. Kids can be so mean. I don't want that for my Tilly.
Anyways, I just wanted to give that little update. For those of you on this journey of ours, and are being supportive, I thank you. I'm loving every moment with Matilda, and miss her when we're sleeping. She is a wonderful kid, and I wouldn't trade her for the world.